But in my case, I’ll take boring. Boring means stable, and I’ll take that over all hell breaking loose. I'm pretty boring anyway, so it works for me. My hemoglobin was 10.6, a small decline from last week’s 10.9 but still good. No Aranesp. No Aranesp is the goal. My creatinine was 1.3, same as … Continue reading Short and Sweet and Boring →

Wow. My hemoglobin was 10.9 today. WOW!  That’s a record-breaker for me! I can definitely tell the boost in my energy over the past week and a half. And that’s not even “normal,” which is 12 or higher. But when I’m in the 10s I can surely tell the difference. I’m going to assume the … Continue reading Hold On To Your Hat! →

Just a short update. No treatment last week. It’s nice to have a little break although it means I work a full day instead of a half day. But I appreciate not having to rush downtown, always running late, worrying if I’ll run into traffic or construction, and getting there just in the nick of … Continue reading Off Week →

Wednesday lab day.   My hemoglobin was right at 10 so I got to skip the Aranesp shot for the first time in forever. I just looked it up, and the last time my hemoglobin was at 10 or more was three months ago. The big news is that my creatinine was down to 1.2! … Continue reading Two Out of Three Ain’t Bad →

I believe it was the last blog post in which I said something like I didn’t believe that my creatinine would get down to 1.4 as the doctor would like. I mean, 1.4 is the high end of normal. I’m not going to get back down to normal. WELL, I WAS WRONG. And happily so. … Continue reading Eating My Words →

Two trips to the lab to recap. Last week, after all the med changes, my creatinine had dropped significantly, down to 1.9 from 3.6. This was excellent news. I guess when the nurse told me, I had a stunned look on my face, which she couldn’t really read due to the mask. She said, “This … Continue reading Stay the Course →

Imagine… you’re just living your life, walking down the street, shopping at the dollar store, or maybe you just finished a gig with your band and you sit down at the bar to order some food. And your heart stops. Not a heart attack. Your heart just decides to take a break. And it stops … Continue reading My Friend Jack →

For about the last five days, I’ve had some really bad back pain. I’m not sure what I did to it, but I was having pretty consistent spasms that were debilitating while they were happening. I spent most of the weekend laying on the couch feeling sorry for myself. I kept thinking every day that … Continue reading “Back Pain is Youth Leaving the Body.” [stolen from a meme] →

This was my first week off from the Kyprolis. The schedule is three weeks on, one week off. Same with the Revlimid. I don’t know why.  I celebrated my week off by going to work. Woo-hoo! I’m mostly working Wednesday mornings now. I wish they would schedule my appointments out farther than just the three-week … Continue reading Time Flies →

Wednesday lab visit today. Second infusion of Kyprolis. That whole process is pretty easy, although it’s a bit time-consuming but I’m used to that by now. The nurse and I were “discussing” (bitching) about my favorite topic, the outrageous cost of health care. She said she’s had patients forego treatment because they simply can’t afford … Continue reading Side Effects →