I’ve been holding off posting anything new because I was waiting to get the results of the 24-hour urine test. But guess what… we still don’t have them. It’s only been 18 days since I turned it in.  Thanks Tri-Core, you smelly turds. I got all excited one day because I thought the results were … Continue reading Jean Therapy →

It was a year ago today that I was diagnosed with this kidney disease, and just a month shy of two years ago that I first started experiencing symptoms. I still have to read the diagnosis from my phone when I’m asked what it’s called. Otherwise, I always leave out one word or another. Proliferative … Continue reading February 7th →

I had a follow up appointment with Dr. T, the hematologist, today. He was very encouraged by my recent lab results which indicated a significant decrease in my blood creatinine levels and an increase in my GFR (kidney function).My creatinine, which at one point was nearing 4 (not good) is now 1.4 (high end of … Continue reading Well Played, Velcade →

I went to my standing hematology appointment on Wednesday for the Velcade shot. In addition, they did my bi-weekly check of my hemoglobin, and it was only 8.7. I can’t figure out why it’s so low and why it’s not improving with the Aranesp shots. And then I sort of laugh at myself for even … Continue reading The Bees’ Knees →

Overall, it was a decent week. I took Monday off so I only worked in clinic two days this week. One was about 2.5 hours away on the Navajo reservation. It was the first time I had been back there since last March!  It was good to go.   Wednesday morning I went to the … Continue reading My Own Worst Enemy →

FINALLY!! The doc is putting me back on lisinopril! Woo-hoo! Never thought I'd be so happy to go ON a medication! But a) I can now dump four other medications, and b) I can stop worrying about stroking out! She's cutting my prednisone down to 7.5 mg for the next month, and no prednisone at … Continue reading 30-Second Update →

I’m so tired lately. Yesterday was another “couch” day, as was today. I slept today for about six hours. That just doesn’t seem normal. I mean, that’s not a nap, that’s a whole night’s worth of sleep. I don’t feel bad or sick, although today I felt a little more shaky than I have lately. … Continue reading “Are You Okay?” →

We’ve slammed the door on the shitty year that was 2020, and hopefully 2021 will be an improvement. It sorta has to be, doesn’t it? But the second you say that, the fire-breathing earthworms come up from the bowels of the planet, enact mind control by crawling into our brains like the Ceti eels in … Continue reading New Year’s Resolutions →

The week before Christmas I had my first overnight trip since my hospital stay.  I was a little apprehensive: how would I feel, how would I do with the 3.5-hour drive. I hadn’t slept too well the night before but I made it through the day with no problems.  I brought my hospital-grade wipes to … Continue reading Ups and Downs →

I am slowly getting better. I’ve noticed little things, like being able to take a shower without having to take a nap afterward. Or yesterday I was able to stand up the whole time while washing the dishes; I didn’t have to sit. (Yes I have a dishwasher; no, I don’t use it.)  And I’m … Continue reading PD →