I’d been calling Dr. F, the local nephrologist, since Tuesday to follow up on the results of the biopsy.  Of course I wanted to see the report, but Dr. A in Pittsburgh was very anxious to see the results.  But like everything else in this battle, nothing comes easily.  On Wednesday, I was told the … Continue reading Dwindling Options →

What a crappy week. In no particular order: Between the back up of toxic fluids in my system combined with the prednisone, I’ve gained about 35 pounds in the past few weeks. This is more than prednisone alone, for sure.  As I’ve mentioned a million times before, this water weight is SO much worse than … Continue reading It’s All Going To Shit →

Wednesday of this week I was completely wiped out.  From the get go. I went to bed pretty early Tuesday night, after taking a nap, and woke up Wednesday morning just dragging. As soon as I got to clinic, about an hour’s drive, I fell asleep in the car. I mean I just zonked out. … Continue reading Say It Ain’t So →

Yesterday I had more lab work done, of course.  If a week goes by with no lab work, I just might be dead. This was for Dr. A in Pennsylvania. Monday I go back for another round for my local doctor here. This morning, bright and early, I got a call from the nurse in … Continue reading What Are We Missing Here? →

I went to hematology Friday for my routine lab work. I was looking forward to this because I was curious as to what my hemoglobin would be now that I was no longer “diluted” with all the saline I was given in the hospital. As crappy as I feel, I knew it had to be … Continue reading Is It Nap Time? →

Saturday night I slept GREAT. Even with the nurses coming in to check vitals and even with getting up to go to the bathroom, I was just O-U-T. Fairly early Sunday morning, my local nephrologist, Dr. F, came in. Luckily for me, she was doing nephrology rounds that day. She did a basic assessment, and … Continue reading Sprung →

This blog entry is coming to you live from the emergency room at Lovelace Downtown hospital.Yesterday morning I woke up feeling pretty good. Not as good as Thursday, but definitely better than I had the week prior. I went to clinic and saw five patients, ending about 12:30. I was packing up my gear, ready … Continue reading Well That Didn’t Last Long →

For the past week, I’ve felt pretty crappy. Fatigue, as I mentioned, but also persistent nausea. Not enough to throw up, but just non-stop gut pain. No fever, and it always seemed to be worse in the morning. I’d have to lay down several times while getting ready for work.  I think I probably noticed … Continue reading A Good Day →

Monday evening I got a message from Dr. A saying she had tried to call me but there was no answer. I was out of town for work and of course didn’t have cell service out in the boonies. She said she got my lab results back from Friday and my creatinine levels were even … Continue reading More Medication Changes →

My lab results the local nephrologist ordered were available Wednesday. The good news: the protein in my urine dropped to 3000, which is still way too high but at least much improved from the nearly 10,000 it was the last time. The bad news: the creatinine in my blood was very high, meaning it’s not … Continue reading The Good, The Bad, and The Oh My God →