This was my first week off from the Kyprolis. The schedule is three weeks on, one week off. Same with the Revlimid. I don’t know why.  I celebrated my week off by going to work. Woo-hoo! I’m mostly working Wednesday mornings now. I wish they would schedule my appointments out farther than just the three-week … Continue reading Time Flies →

Wednesday lab visit today. Second infusion of Kyprolis. That whole process is pretty easy, although it’s a bit time-consuming but I’m used to that by now. The nurse and I were “discussing” (bitching) about my favorite topic, the outrageous cost of health care. She said she’s had patients forego treatment because they simply can’t afford … Continue reading Side Effects →

No joke, having a chronic illness requires so much time, effort, and management. I don’t know if this is the case in other states, but it sure as hell is here. I was trying to get a refill on a medication from my doctor in PA. She said she had sent it to Walgreens here … Continue reading My Second Full-Time Job →

Get it? Afoot? Because I’ve been having foot issues? Yes I know… super lame. Ha. I saw Dr. T, the oncologist, yesterday. Normally I just take notes at these appointments in my phone but for some reason I brought a pen and notebook yesterday. Good thing, too. It was a lot of information. Because my … Continue reading Changes Are Afoot →

Last week was very stressful. Wednesday at the lab my hemoglobin was 9.0 so I got an Aranesp shot, first one in a long time.  Of course I got the Velcade shot too. Man, that Aranesp shot made my arm very sore, which is unusual.  Usually those shots only hurt during the administration, except my … Continue reading I Need Some Sleep →

I know quite a bit of what I post is repetitive information, so we’ll get that over and done with first: Feet: still bothering me.Fatigue: yep, still tired as shit pretty much most of the time.  I feel like I could sleep for a week, and I’d still be exhausted.BP: waaaaaay better. Wednesday at the … Continue reading It’s My Party and I’ll Cry If I Want To →

I’ll get the semi-bad crap out of the way right off the top:  I didn’t sleep again last night. Not for one second. And a three-and-a-half-hour drive to clinic today (and back home tomorrow). I am beat. My feet are still bugging me but I’m just going to wait it out. They’re not terrible, but … Continue reading Mixed Bag →

Not a great deal to report this week, except to say that my hemoglobin Wednesday was 10.8, absolutely the highest since at least April 2019, when I first went to rapid care due to my dizziness symptoms.  (It was 9.4 then.)  I’m sure this is due to the bump in the Aranesp, but whatever works. … Continue reading Save a Life →

Another sleepless Wednesday night. And when I say sleepless, I mean not one minute of sleep.  Zero winks. Dexamethasone is definitely the culprit. I’m dragging today but it will probably be worse tomorrow. Luckily today I didn’t have a long commute as I was in the office for a bit then working from home. But … Continue reading Small World →

Mark this date down! April 3, 2021… my last day of prednisone! From May 1, 2020 until yesterday, that cursed drug has been running through my system. Now it finally gets to be on its way out. I am advised to watch for fatigue (uh…) and dizziness. Apparently with long-term use of prednisone, the adrenal … Continue reading Balloons →