I know quite a bit of what I post is repetitive information, so we’ll get that over and done with first: Feet: still bothering me.Fatigue: yep, still tired as shit pretty much most of the time.  I feel like I could sleep for a week, and I’d still be exhausted.BP: waaaaaay better. Wednesday at the … Continue reading It’s My Party and I’ll Cry If I Want To →

I’ll get the semi-bad crap out of the way right off the top:  I didn’t sleep again last night. Not for one second. And a three-and-a-half-hour drive to clinic today (and back home tomorrow). I am beat. My feet are still bugging me but I’m just going to wait it out. They’re not terrible, but … Continue reading Mixed Bag →

Not a great deal to report this week, except to say that my hemoglobin Wednesday was 10.8, absolutely the highest since at least April 2019, when I first went to rapid care due to my dizziness symptoms.  (It was 9.4 then.)  I’m sure this is due to the bump in the Aranesp, but whatever works. … Continue reading Save a Life →

Another sleepless Wednesday night. And when I say sleepless, I mean not one minute of sleep.  Zero winks. Dexamethasone is definitely the culprit. I’m dragging today but it will probably be worse tomorrow. Luckily today I didn’t have a long commute as I was in the office for a bit then working from home. But … Continue reading Small World →

Mark this date down! April 3, 2021… my last day of prednisone! From May 1, 2020 until yesterday, that cursed drug has been running through my system. Now it finally gets to be on its way out. I am advised to watch for fatigue (uh…) and dizziness. Apparently with long-term use of prednisone, the adrenal … Continue reading Balloons →

Are you sitting down? Are ya? How about mostly GOOD news for a change? Overall, I think things are improving.  I am still tired a lot but I definitely have more energy than a month ago. I’m sleeping better most of the time, and I can get through the day better now than I could … Continue reading I Yam What I Yam →

I’ve been holding off posting anything new because I was waiting to get the results of the 24-hour urine test. But guess what… we still don’t have them. It’s only been 18 days since I turned it in.  Thanks Tri-Core, you smelly turds. I got all excited one day because I thought the results were … Continue reading Jean Therapy →

It was a year ago today that I was diagnosed with this kidney disease, and just a month shy of two years ago that I first started experiencing symptoms. I still have to read the diagnosis from my phone when I’m asked what it’s called. Otherwise, I always leave out one word or another. Proliferative … Continue reading February 7th →

I had a follow up appointment with Dr. T, the hematologist, today. He was very encouraged by my recent lab results which indicated a significant decrease in my blood creatinine levels and an increase in my GFR (kidney function).My creatinine, which at one point was nearing 4 (not good) is now 1.4 (high end of … Continue reading Well Played, Velcade →