FINALLY!! The doc is putting me back on lisinopril! Woo-hoo! Never thought I'd be so happy to go ON a medication! But a) I can now dump four other medications, and b) I can stop worrying about stroking out! She's cutting my prednisone down to 7.5 mg for the next month, and no prednisone at … Continue reading 30-Second Update →

I’m so tired lately. Yesterday was another “couch” day, as was today. I slept today for about six hours. That just doesn’t seem normal. I mean, that’s not a nap, that’s a whole night’s worth of sleep. I don’t feel bad or sick, although today I felt a little more shaky than I have lately. … Continue reading “Are You Okay?” →

We’ve slammed the door on the shitty year that was 2020, and hopefully 2021 will be an improvement. It sorta has to be, doesn’t it? But the second you say that, the fire-breathing earthworms come up from the bowels of the planet, enact mind control by crawling into our brains like the Ceti eels in … Continue reading New Year’s Resolutions →

The week before Christmas I had my first overnight trip since my hospital stay.  I was a little apprehensive: how would I feel, how would I do with the 3.5-hour drive. I hadn’t slept too well the night before but I made it through the day with no problems.  I brought my hospital-grade wipes to … Continue reading Ups and Downs →

I am slowly getting better. I’ve noticed little things, like being able to take a shower without having to take a nap afterward. Or yesterday I was able to stand up the whole time while washing the dishes; I didn’t have to sit. (Yes I have a dishwasher; no, I don’t use it.)  And I’m … Continue reading PD →

I am an idiot. I fully expected I would be much further along than I am at present. Tomorrow will be two weeks since I was discharged from the hospital. Progress is incremental. I am still very weak, very tired, with little stamina. A shower wipes me out. I have a chair in the kitchen … Continue reading Curb Your Enthusiasm →

Happy Thanksgiving! I hope you had a relaxing holiday in whatever form it took.  It was just my mom, Kyle, and me at dinner tonight, socially-distanced, me wearing a mask other than when eating. My mom’s house is the usual gathering spot, and we typically have a number of friends over as well. The last … Continue reading Home Again →

I slept really well the night before last but last night...nope. My newest roomie is an elderly woman in a lot of pain, so she was hollering most of the night. Poor thing. She couldn't help it. But it made for a restless night, so when she slept today, I got a good nap in … Continue reading Sleepless in Sick Town →

I'm typing this all from my phone so forgive the errors. I'm not even sure where to start with all this. Last week, I had two clinic days but otherwise worked from home. I actually did okay aside from being tired. But shortly after that, things began really diminishing. This week, I was supposed to … Continue reading Back in the US-ER →

I’d been calling Dr. F, the local nephrologist, since Tuesday to follow up on the results of the biopsy.  Of course I wanted to see the report, but Dr. A in Pittsburgh was very anxious to see the results.  But like everything else in this battle, nothing comes easily.  On Wednesday, I was told the … Continue reading Dwindling Options →