I was supposed to be off this whole week, but I screwed up my schedule and accidentally put myself in clinic on Monday. That sucked but it was only one day. Until I got violently ill the evening before. Man, it just came on out of nowhere! I had to call in sick Monday morning. … Continue reading Vacation Week! Woo-hoo! Except Not.
Author: Lori W
After a year of mysterious symptoms, I was diagnosed with a rare kidney disease. Little did I know that would only be half the battle.
Shots and Labs and All That Jazz
March is National Kidney Month! How lucky am *I* to have two “special” months in a row? Yep. Special all right. I read on one site that 40% of people who have significant kidney disease are unaware/ undiagnosed. Another trusted site said NINETY percent of people are undiagnosed. That’s crazy. It’s a leading cause of … Continue reading Shots and Labs and All That Jazz
Rare Disease Day
It’s that time of year again! February is Rare Disease Month, and the last day of February is Rare Disease Day. There is a whole campaign around this, with online events, seminars, walks to raise awareness, appeals to governments for more research money, etc. It started in 2008 in 18 countries but now it’s observed … Continue reading Rare Disease Day
Catching Up
No earth-shattering news, just a roundup of some miscellaneous things over the past month. It’s now been two years since my official diagnosis with this blasted disease (“proliferative glomerulonephritis with monoclonal igG3 kappa deposits,” for the record). I still have to refer to the note in my phone when I tell a doc what I … Continue reading Catching Up
Movin’ On Up
Well damn. 2022. Nothing much more to say about that. I hope everyone enjoyed the holidays and got some time away from work. I had about a week and a half off, and it was glorious. I didn’t do anything but LOVED not having to get up at dawn’s crack. I also had the last … Continue reading Movin’ On Up
Beat the Time
Wednesday’s lab visit was mostly routine. My hemoglobin was 9.8 so I did get an Aranesp shot. It had been a little over a month since the last one. My creatinine was back down to 1.3 (it was 1.5 last week) so perhaps the dehydration was responsible for the increase. My eGFR was 46. Today … Continue reading Beat the Time
The Routine Beckons
Vacation is over. Back to the grind. We did have a lovely time in Silver City. And I did make it up to the ruins at the Gila Cliff Dwellings. I felt like crap though. It was very reminiscent of the Acropolis, in that I was scrambling from one place to sit to another. I … Continue reading The Routine Beckons
Stepping Stones
Costa Rica, October 2019. That was the last time I took a trip. (No, I am not counting my drive to Pennsylvania last summer. There was not an ounce of pleasure in that trip.) Obviously 2020 was a wash travel-wise for everyone. I had planned to go to Hawaii with Rose in the spring and … Continue reading Stepping Stones
Orange You Glad I Didn’t Say Banana?
Damn. Long day today. Started off with a patient in the office at 7:00 am. Then an hour’s drive west to one of our clinics to see two patients out there. Then headed back east 15 minutes to a Native American nursing home to see two patients there. Then back to the office to try … Continue reading Orange You Glad I Didn’t Say Banana?
“A Problem of Success”
Two important appointments this week. The first was with Dr. E, my endocrinologist. She reminds me a bit of a hummingbird. She is tiny and in constant motion—not in a bad way, but you can tell her mind is always spinning. I’ve learned not to get too attached to doctors because when I have a … Continue reading “A Problem of Success”
Low, Low, Low 