Pyramids

Wow, four months since I last posted here. No news is good news, right? I saw the oncologist in April. He echoed nearly verbatim my thoughts about chemo: that stopping now just because the insurance won’t pay vs. having clinical data over a year showing good response with reduced administration isn’t the wisest course of … Continue reading Pyramids →

I’m FULL of Surprises!

I saw the concierge dermatologist a couple of weeks ago regarding my hair loss. Wow, what a nice guy. And really knowledgeable. He got up close and personal with my scalp and a lighted magnifier of some sort and said that my scalp doesn’t look normal. “I was not expecting to see what I’m seeing.” … Continue reading I’m FULL of Surprises! →

Quick Update

My oncologist met with a physician from my insurance company, known as a “peer to peer” review. And they denied coverage for my chemo right then and there before he was even off the phone. "It's experimental. We don't cover experimental treatments." He’s filing an appeal but I’m not hopeful. On the one hand, I … Continue reading Quick Update →

Duh… I Should Have Known

Early February marked five years since I was diagnosed with this disease. March will be six years since I first began having symptoms. On one hand, it’s hard to remember a time when this disease didn’t dominate my life. On the other, I’m so grateful that I’m doing as well as I am and that … Continue reading Duh… I Should Have Known →

Doctor Round Up

Long time no blog! I guess like most things, no news is good news. I’ve had several doctors’ appointments since July. The concierge endocrinologist (Dr. S) told me because of my “complicated health history,” she wanted to see me monthly for the next several months. She’s a bit quirky and is incredibly thorough. I’ve seen … Continue reading Doctor Round Up →

Déjà Vu All Over Again

My last chemo treatment was January 31st, and my next was scheduled for February 14th. So I was surprised to receive a message on my voicemail on Wednesday that my appointment had been cancelled because the insurance hadn’t approved it yet. What??I spent an hour on the phone three weeks ago getting this all squared … Continue reading Déjà Vu All Over Again →