I am an idiot. I fully expected I would be much further along than I am at present. Tomorrow will be two weeks since I was discharged from the hospital. Progress is incremental. I am still very weak, very tired, with little stamina. A shower wipes me out. I have a chair in the kitchen … Continue reading Curb Your Enthusiasm →

Happy Thanksgiving! I hope you had a relaxing holiday in whatever form it took.  It was just my mom, Kyle, and me at dinner tonight, socially-distanced, me wearing a mask other than when eating. My mom’s house is the usual gathering spot, and we typically have a number of friends over as well. The last … Continue reading Home Again →

I slept really well the night before last but last night...nope. My newest roomie is an elderly woman in a lot of pain, so she was hollering most of the night. Poor thing. She couldn't help it. But it made for a restless night, so when she slept today, I got a good nap in … Continue reading Sleepless in Sick Town →

I'm typing this all from my phone so forgive the errors. I'm not even sure where to start with all this. Last week, I had two clinic days but otherwise worked from home. I actually did okay aside from being tired. But shortly after that, things began really diminishing. This week, I was supposed to … Continue reading Back in the US-ER →

I’d been calling Dr. F, the local nephrologist, since Tuesday to follow up on the results of the biopsy.  Of course I wanted to see the report, but Dr. A in Pittsburgh was very anxious to see the results.  But like everything else in this battle, nothing comes easily.  On Wednesday, I was told the … Continue reading Dwindling Options →

What a crappy week. In no particular order: Between the back up of toxic fluids in my system combined with the prednisone, I’ve gained about 35 pounds in the past few weeks. This is more than prednisone alone, for sure.  As I’ve mentioned a million times before, this water weight is SO much worse than … Continue reading It’s All Going To Shit →

Wednesday of this week I was completely wiped out.  From the get go. I went to bed pretty early Tuesday night, after taking a nap, and woke up Wednesday morning just dragging. As soon as I got to clinic, about an hour’s drive, I fell asleep in the car. I mean I just zonked out. … Continue reading Say It Ain’t So →

Yesterday I had more lab work done, of course.  If a week goes by with no lab work, I just might be dead. This was for Dr. A in Pennsylvania. Monday I go back for another round for my local doctor here. This morning, bright and early, I got a call from the nurse in … Continue reading What Are We Missing Here? →

I went to hematology Friday for my routine lab work. I was looking forward to this because I was curious as to what my hemoglobin would be now that I was no longer “diluted” with all the saline I was given in the hospital. As crappy as I feel, I knew it had to be … Continue reading Is It Nap Time? →

Saturday night I slept GREAT. Even with the nurses coming in to check vitals and even with getting up to go to the bathroom, I was just O-U-T. Fairly early Sunday morning, my local nephrologist, Dr. F, came in. Luckily for me, she was doing nephrology rounds that day. She did a basic assessment, and … Continue reading Sprung →