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Self-Advocacy in the Age of a Broken Health Care System

Catching Up

No earth-shattering news, just a roundup of some miscellaneous things over the past month. It’s now been two years since my official diagnosis with this blasted disease (“proliferative glomerulonephritis with monoclonal igG3 kappa deposits,” for the record). I still have to refer to the note in my phone when I tell a doc what I … Continue reading Catching Up →

Lori W Uncategorized Leave a comment February 20, 2022 7 Minutes

Movin’ On Up

Well damn. 2022. Nothing much more to say about that. I hope everyone enjoyed the holidays and got some time away from work. I had about a week and a half off, and it was glorious. I didn’t do anything but LOVED not having to get up at dawn’s crack. I also had the last … Continue reading Movin’ On Up →

Lori W Uncategorized Leave a comment January 5, 2022 8 Minutes

Beat the Time

Wednesday’s lab visit was mostly routine. My hemoglobin was 9.8 so I did get an Aranesp shot. It had been a little over a month since the last one. My creatinine was back down to 1.3 (it was 1.5 last week) so perhaps the dehydration was responsible for the increase. My eGFR was 46. Today … Continue reading Beat the Time →

Lori W Uncategorized Leave a comment November 22, 2021 6 Minutes

The Routine Beckons

Vacation is over. Back to the grind. We did have a lovely time in Silver City. And I did make it up to the ruins at the Gila Cliff Dwellings. I felt like crap though. It was very reminiscent of the Acropolis, in that I was scrambling from one place to sit to another. I … Continue reading The Routine Beckons →

Lori W Uncategorized Leave a comment November 14, 2021December 3, 2021 6 Minutes

Stepping Stones

Costa Rica, October 2019. That was the last time I took a trip. (No, I am not counting my drive to Pennsylvania last summer. There was not an ounce of pleasure in that trip.) Obviously 2020 was a wash travel-wise for everyone. I had planned to go to Hawaii with Rose in the spring and … Continue reading Stepping Stones →

Lori W Uncategorized Leave a comment October 25, 2021 4 Minutes

Orange You Glad I Didn’t Say Banana?

Damn. Long day today. Started off with a patient in the office at 7:00 am. Then an hour’s drive west to one of our clinics to see two patients out there. Then headed back east 15 minutes to a Native American nursing home to see two patients there. Then back to the office to try … Continue reading Orange You Glad I Didn’t Say Banana? →

Lori W Uncategorized Leave a comment October 21, 2021October 21, 2021 8 Minutes

“A Problem of Success”

Two important appointments this week. The first was with Dr. E, my endocrinologist. She reminds me a bit of a hummingbird. She is tiny and in constant motion—not in a bad way, but you can tell her mind is always spinning. I’ve learned not to get too attached to doctors because when I have a … Continue reading “A Problem of Success” →

Lori W Uncategorized Leave a comment September 29, 2021 11 Minutes

I Got Your Meme Right Here

My experiment with cutting my lisinopril seems to have helped. My creatinine this week was back down to 1.4, and my GFR increased to 40. My BP is still doing very well so I’m going to stay on the 20 mg lisinopril for another week to monitor and then try stopping it all together and … Continue reading I Got Your Meme Right Here →

Lori W Uncategorized Leave a comment September 25, 2021 5 Minutes

Peanut Butter To The Rescue

Well, as is typical, this entry will mostly be a repeat of previous stuff. Nothing earthshatteringly new. My last visit at the lab was two weeks ago as the previous week was my “off” week. My hemoglobin this past Wednesday had dropped to 9.7, so this was an Aranesp week. And I was wrong last … Continue reading Peanut Butter To The Rescue →

Lori W Uncategorized Leave a comment September 19, 2021 3 Minutes

Can’t Complain… But You Know I Still Will

Amazingly, everything is still heading in the right direction.Last week, my hemoglobin was 10.5, a smidge down from the week before (10.6). So no Aranesp once again. The last time I had to get a shot was 7/28/2021. Pretty good! Hopefully I’ll get to skip next week too. My creatinine continues to hold steady at … Continue reading Can’t Complain… But You Know I Still Will →

Lori W Uncategorized Leave a comment September 12, 2021 4 Minutes

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