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Self-Advocacy in the Age of a Broken Health Care System

Category: Uncategorized

I Got Your Meme Right Here

My experiment with cutting my lisinopril seems to have helped. My creatinine this week was back down to 1.4, and my GFR increased to 40. My BP is still doing very well so I’m going to stay on the 20 mg lisinopril for another week to monitor and then try stopping it all together and … Continue reading I Got Your Meme Right Here →

Lori W Uncategorized Leave a comment September 25, 2021 5 Minutes

Peanut Butter To The Rescue

Well, as is typical, this entry will mostly be a repeat of previous stuff. Nothing earthshatteringly new. My last visit at the lab was two weeks ago as the previous week was my “off” week. My hemoglobin this past Wednesday had dropped to 9.7, so this was an Aranesp week. And I was wrong last … Continue reading Peanut Butter To The Rescue →

Lori W Uncategorized Leave a comment September 19, 2021 3 Minutes

Can’t Complain… But You Know I Still Will

Amazingly, everything is still heading in the right direction.Last week, my hemoglobin was 10.5, a smidge down from the week before (10.6). So no Aranesp once again. The last time I had to get a shot was 7/28/2021. Pretty good! Hopefully I’ll get to skip next week too. My creatinine continues to hold steady at … Continue reading Can’t Complain… But You Know I Still Will →

Lori W Uncategorized Leave a comment September 12, 2021 4 Minutes

Short and Sweet and Boring

But in my case, I’ll take boring. Boring means stable, and I’ll take that over all hell breaking loose. I'm pretty boring anyway, so it works for me. My hemoglobin was 10.6, a small decline from last week’s 10.9 but still good. No Aranesp. No Aranesp is the goal. My creatinine was 1.3, same as … Continue reading Short and Sweet and Boring →

Lori W Uncategorized Leave a comment August 25, 2021 2 Minutes

Hold On To Your Hat!

Wow. My hemoglobin was 10.9 today. WOW!  That’s a record-breaker for me! I can definitely tell the boost in my energy over the past week and a half. And that’s not even “normal,” which is 12 or higher. But when I’m in the 10s I can surely tell the difference. I’m going to assume the … Continue reading Hold On To Your Hat! →

Lori W Uncategorized Leave a comment August 18, 2021 4 Minutes

Off Week

Just a short update. No treatment last week. It’s nice to have a little break although it means I work a full day instead of a half day. But I appreciate not having to rush downtown, always running late, worrying if I’ll run into traffic or construction, and getting there just in the nick of … Continue reading Off Week →

Lori W Uncategorized Leave a comment August 16, 2021 2 Minutes

Two Out of Three Ain’t Bad

Wednesday lab day.   My hemoglobin was right at 10 so I got to skip the Aranesp shot for the first time in forever. I just looked it up, and the last time my hemoglobin was at 10 or more was three months ago. The big news is that my creatinine was down to 1.2! … Continue reading Two Out of Three Ain’t Bad →

Lori W Uncategorized Leave a comment August 7, 2021 3 Minutes

Eating My Words

I believe it was the last blog post in which I said something like I didn’t believe that my creatinine would get down to 1.4 as the doctor would like. I mean, 1.4 is the high end of normal. I’m not going to get back down to normal. WELL, I WAS WRONG. And happily so. … Continue reading Eating My Words →

Lori W Uncategorized Leave a comment July 29, 2021July 29, 2021 8 Minutes

Stay the Course

Two trips to the lab to recap. Last week, after all the med changes, my creatinine had dropped significantly, down to 1.9 from 3.6. This was excellent news. I guess when the nurse told me, I had a stunned look on my face, which she couldn’t really read due to the mask. She said, “This … Continue reading Stay the Course →

Lori W Uncategorized Leave a comment July 7, 2021July 11, 2021 8 Minutes

My Friend Jack

Imagine… you’re just living your life, walking down the street, shopping at the dollar store, or maybe you just finished a gig with your band and you sit down at the bar to order some food. And your heart stops. Not a heart attack. Your heart just decides to take a break. And it stops … Continue reading My Friend Jack →

Lori W Uncategorized Leave a comment June 30, 2021June 30, 2021 2 Minutes

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