Wednesday lab day.   My hemoglobin was right at 10 so I got to skip the Aranesp shot for the first time in forever. I just looked it up, and the last time my hemoglobin was at 10 or more was three months ago. The big news is that my creatinine was down to 1.2! … Continue reading Two Out of Three Ain’t Bad →

I believe it was the last blog post in which I said something like I didn’t believe that my creatinine would get down to 1.4 as the doctor would like. I mean, 1.4 is the high end of normal. I’m not going to get back down to normal. WELL, I WAS WRONG. And happily so. … Continue reading Eating My Words →

Two trips to the lab to recap. Last week, after all the med changes, my creatinine had dropped significantly, down to 1.9 from 3.6. This was excellent news. I guess when the nurse told me, I had a stunned look on my face, which she couldn’t really read due to the mask. She said, “This … Continue reading Stay the Course →

Imagine… you’re just living your life, walking down the street, shopping at the dollar store, or maybe you just finished a gig with your band and you sit down at the bar to order some food. And your heart stops. Not a heart attack. Your heart just decides to take a break. And it stops … Continue reading My Friend Jack →

For about the last five days, I’ve had some really bad back pain. I’m not sure what I did to it, but I was having pretty consistent spasms that were debilitating while they were happening. I spent most of the weekend laying on the couch feeling sorry for myself. I kept thinking every day that … Continue reading “Back Pain is Youth Leaving the Body.” [stolen from a meme] →

This was my first week off from the Kyprolis. The schedule is three weeks on, one week off. Same with the Revlimid. I don’t know why.  I celebrated my week off by going to work. Woo-hoo! I’m mostly working Wednesday mornings now. I wish they would schedule my appointments out farther than just the three-week … Continue reading Time Flies →

Wednesday lab visit today. Second infusion of Kyprolis. That whole process is pretty easy, although it’s a bit time-consuming but I’m used to that by now. The nurse and I were “discussing” (bitching) about my favorite topic, the outrageous cost of health care. She said she’s had patients forego treatment because they simply can’t afford … Continue reading Side Effects →

No joke, having a chronic illness requires so much time, effort, and management. I don’t know if this is the case in other states, but it sure as hell is here. I was trying to get a refill on a medication from my doctor in PA. She said she had sent it to Walgreens here … Continue reading My Second Full-Time Job →

Get it? Afoot? Because I’ve been having foot issues? Yes I know… super lame. Ha. I saw Dr. T, the oncologist, yesterday. Normally I just take notes at these appointments in my phone but for some reason I brought a pen and notebook yesterday. Good thing, too. It was a lot of information. Because my … Continue reading Changes Are Afoot →

Last week was very stressful. Wednesday at the lab my hemoglobin was 9.0 so I got an Aranesp shot, first one in a long time.  Of course I got the Velcade shot too. Man, that Aranesp shot made my arm very sore, which is unusual.  Usually those shots only hurt during the administration, except my … Continue reading I Need Some Sleep →