In early 2020, I was diagnosed with a rare kidney disease after having intermittent mysterious symptoms for about a year. It has been an eye-opening journey through a broken health care system. I have had to fight every step of the way for treatment–and I’m still not there yet.
Who I Am
At the time of this writing, I am a 52 year old rural health care provider living in Albuquerque, New Mexico. I’m well-versed in the language of health care, but even that didn’t prepare me for the roadblocks I would encounter trying to save my own life.
Why This Blog?
Truthfully, I just needed an outlet for my rage (yes, rage) at our healthcare system. I didn’t want to continually burden my family and friends with my constant negativity surrounding my health issues and the lack of care I was receiving. My therapist who was helping me address my anger actually suggested a blog. I had already been thinking about it, and her agreement that it might be of use to me (even if no one else) spurred me on.
My friends and family who are interested in the my healthcare can read about it here, and perhaps at some point I’ll have something meaningful to say about self-advocacy within a system that truly doesn’t care if we live or die.
But if nothing else, it’s a place to park my rage.
Thank you for reading.